Everyone who knows Harper and Amie would agree that they hold an exuberant positive energy that they openly share with everyone they meet. They first met in architecture school and are now approaching 3 years of marriage. Shortly before the birth of their beautiful baby girl, Nari Fae Bates, Harper was diagnosed with ALS. They are now experiencing the mixed fate of the infinite joy that comes with new life as well as the infinite challenges and hurdles that come with the diagnosis of ALS.

Want to help? Check back here often for several ways you can directly help Harper, Amie and Nari!

upcoming events

Laughing Swan Massage
Will donate $10 from every massage throughout December to Harper and Amie. A perfect way to relieve holiday stress.
Rate: $70 for 60 mins / $90 for 90 mins
1316 NW 23rd (next to the New Renaisance Bookstore)
Contact Jill Dawson - Pex: 503-201-1564
Click for more info.

previous events

The team at Pigment Salon will donate 100% of our earnings and tips (for a cut, colour, perm, whatever!) to help this deserving family.
Sunday, November 8th from 10am to 2pm
121 SW Morrison Suite 175 PDX 97204
Contact: John Posey (503) 998-4268
Click for more info.

Art & Furniture Silent Auction
Saturday Nov 14th 5pm to 9pm
Lovett Deconstruction Warehouse 2030 N Willis Blvd Pdx 97217 (next to Paul Bunyan in Kenton)
Music, beer and good times.

If any artists want to donate a piece for the auction they can contact Der @ (503) 679-1096

Red Wigs on Bikes
Boulder, CO Satellite Ride
October 18, 3pm
Start Location: North Boulder Park Pavillion
Ending at the Park with caramel apples, donuts, and warm drinks

This was an amazing event!
See photos and video of the event on Facebook.

The goal of the Red Wigs on Bikes Benefit was to ease some of the financial distress including the 6 month income loss between unemployment and ALS disability kicking in.

Direct Donation

If you wish to make a secure online donation directly to Harper and Amie Bates using PayPal click here:

To make a direct donation by check, email thelivingloop@gmail.com for Harper and Amie's address.

Stay in Touch

Join the Living Loop group on Facebook!

ALS (also known as Lou Gehrig's disease) is a progressive neurodegenerative disease which is terminal. Muscle movement is gradually lost leading to total paralysis. The mind, however, is left completely unaffected. ALS leaves a heartbreaking trail behind its victims and their families. It is an all consuming emotional and physical battle as the patients and their families cope with the current and advancing impairments along with limitations on work hours and income. The disease is financially devastating requiring therapies, extensive nursing care, expensive equipment, medications, and home renovations for accessibility.

For more information, visit:
wikipedia.org and
also.org

What ALS means financially:
ALS requires extensive therapies, medications, medical procedures, expensive equipment, home accessibility improvements, at-home nursing care, and more. Unfortunately Health insurance does not cover all procedures, labs, etc. When they do approve, it is typically for 80% of the cost, and even then it is an uphill battle to recover claims. Nursing Care for ALS is not covered by any program. The primary care giver either pays for full time nursing care (as well as child care in this case) with one income or stops working to provide around the clock care.